Last week Adrian and I went back to Nottingham to have a nephrology review following our stay on ward back in July. The one day trip was a success in as much as both planned tests were completed, bloods taken and he was reviewed by Dr Evans. I was told then that Adrian’s rapid decline in filtration was quite a surprise to them, as he’d been doing a lot better than it was ever anticipated for over a year. The upshot of his filtration decline however is seemingly irreversible and has simply sped up the need for further treatment. Dr Evans told me he would get a transplant letter sent out to me in the next couple of weeks, and yesterday it came.
Just an ordinary looking envelope, but the contents knocked me sideways. Most of the detailed information within I did actually know, but to see the words laid out in black and white made me feel hopelessly scared for the future.
Adrian ‘s eGFR is now as low as 14% in his single remaining kidney, meaning he is now at stage 5 Chronic Kidney Disease. Dr Evans went on to plot graphs of his expected decline and estimates that Adrian will reach ESRF (or 5%GFR) in approximately 12 months time. It is at this point that Adrian will need to receive life saving treatment such as dialysis, if a pre-emptive transplant isn’t performed.
When I think back on the flurry that was the last 12 months, and how quickly it seems to have passed us by. I can’t even believe that Adrian only has that time left before something so major needs to be done to sustain his little life.
Since yesterday, I just can’t stop thinking of all the possible complications and dangers that surgery faces. The terrible distance from home we will be if dialysis is suddenly required, and just how unfair it is that Adrian won’t be able to enjoy a carefree childhood.